My Sister Jessica
Written and presented by Christina Gentle at the 2018 RARE Gala GalaSpeech Hi everyone, thanks for being here tonight. I’m Christina, Jessica Gentle’s sister. If you were at the Gala last year you might remember [...]
Sanfilippo and How it Affects My Family
Written by Hannah Gilhuis in the spring of 2014. Imagine if you couldn’t express yourself in the way others around you could. That is what it is like for my siblings Rachel and Mathew, who [...]
Living life successfully with Morquio A
Hello Everyone, My name is Natasha Kaweski and I have MPS IVA (Morquio A). I was diagnosed with Morquio syndrome when I was one and my brother, Damien, was three. My parents noticed that [...]
Learning To Be Open
Dear reader, My name is Lianne Bankert. You may have heard of my brother Matthew and sister Kerrin, as well as my parents Ralph and Cathy. We live in Port Colborne, ON. My brother [...]
Proud to Represent TeamMPS!!
On October 21st, I participated in the Scotiabank Marathon (and no, I didn’t run the Marathon… I did a measly 5km) alongside my fiancé and a few great friends. This was my first time participating [...]
My Experience with MPS
When I was born, my mother noticed a small bump on my back. They said I was fine and so, my mother had another child, my brother. Nevertheless, my mother felt something might be wrong… [...]
Canadian MPS Society
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