AdminBrandtopia

/AdminBrandtopia

About AdminBrandtopia

This author has not yet filled in any details.
So far AdminBrandtopia has created 7 blog entries.

Live Your Best Life National Family Conference

2017-05-29T22:05:56+00:00

Live Your Best Life Join us July 21-23, 2017 Founded in 1984, The Canadian Society for Mucopolysaccharide and Related Diseases Inc. (The Canadian MPS Society) is committed to providing support to individuals and families affected with Mucopolysaccharide (MPS) and related diseases. Our bi-annual conferences give families affected by MPS & related diseases an opportunity to [...]

Live Your Best Life National Family Conference 2017-05-29T22:05:56+00:00

Donate Today!

2017-03-13T22:14:28+00:00

Donate Today! Helping us fulfill our mission of supporting families affected by MPS & related diseases and funding research for a cure is the greatest gift anyone can give. Interested in organizing a fundraising event for the Canadian MPS Society, please contact our head office, so we can assist you and help make your event [...]

Donate Today! 2017-03-13T22:14:28+00:00

14th Annual Fundraising Gala

2017-06-05T22:28:10+00:00

The 14th Annual Canadian MPS Society's Fundraising Gala - IGNITE HOPE - was a tremendous success!! The event raised just shy of $30,000 to support Canadian families affected by MPS and to advance research to find a cure! Click here to see the photo gallery.    

14th Annual Fundraising Gala 2017-06-05T22:28:10+00:00

New Brunswick Announces Rare Disease Plan!

2017-05-08T19:56:49+00:00

Rare diseases drug plan established 28 July 2014 FREDERICTON (GNB) – The provincial government has established the New Brunswick Drugs for Rare Diseases Plan which will provide assistance to those with certain rare diseases who face high drug costs. “The cost of drugs to treat rare diseases can sometimes reach a million dollars per year per [...]

New Brunswick Announces Rare Disease Plan! 2017-05-08T19:56:49+00:00

MPS IV A Families in the News!

2017-05-08T19:58:47+00:00

MPS IV A Families in the News! Calgary’s Barb Larson appeared on AM630 CHED’s “Tencer and Grose” show in Edmonton, Alberta on July 9 to talk about her daughter Savannah’s journey with MPS IVA, Health Canada approval of VIMIZIM and the need for publicly funded access to treatment. Listen to the interview here: https://soundcloud.com/#630ched/tg-july-9-hr2  (beginning at [...]

MPS IV A Families in the News! 2017-05-08T19:58:47+00:00

Cornwall family’s spirit gets a lift

2017-05-08T20:01:30+00:00

Cornwall family's spirit gets a lift By Adam Brazeau CORNWALL, Ontario - A powerful act of generosity has given 10-year-old Melanie Bourdon the ability to reach new heights.                             The Cornwall girl was diagnosed with Morquio A Syndrome (MPS IVA) at the tender [...]

Cornwall family’s spirit gets a lift 2017-05-08T20:01:30+00:00