In The News

/In The News

2018 Summer Studentship Research Grants – Request for Applications

2018-03-08T09:50:44+00:00

The Canadian Society for Mucopolysaccharide & Related Diseases Inc. (The Canadian MPS Society) is once again offering a limited number of Summer Studentship Research Grants for medical students and university undergraduates.  It is our hope that these opportunities may result in more individuals being attracted to research careers involving lysosomal storage disorders. The studentships are tenable [...]

2018 Summer Studentship Research Grants – Request for Applications 2018-03-08T09:50:44+00:00

ArmaGen Update on Hurler Syndrome Development Program

2018-03-06T10:26:06+00:00

AGT-181: Investigational Therapy for the Treatment of Patients with Hurler Syndrome AGT-181 is an investigational enzyme replacement therapy designed to treat both the body-related and central nervous system-related symptoms and complications of MPS I. Currently approved treatments for MPS I are unable to penetrate the blood-brain barrier (BBB), a filter that protects the brain from harmful substances like toxins and bacteria but allows [...]

ArmaGen Update on Hurler Syndrome Development Program 2018-03-06T10:26:06+00:00

BioMarin Presents Interim Data Treatment of MPS IIIB

2017-09-07T01:40:12+00:00

News Release Issued: Sep 6, 2017 (8:00am PDT) To view this release online and get more information about BioMarin : IR Room visit: http://investors.biomarin.com/2017-09-06-BioMarin-Presents-Interim-Data-of-Phase-1-2-Study-of-BMN-250-for-Treatment-of-Sanfilippo-B-Syndrome-MPS-IIIB-at-13th-International-Congress-of-Inborn-Errors-of-Metabolism-ICIEM-2017 BioMarin Presents Interim Data of Phase 1/2 Study of BMN 250 for Treatment of Sanfilippo B Syndrome (MPS IIIB) at 13th International Congress of Inborn Errors of Metabolism (ICIEM) 2017 Preliminary biomarker [...]

BioMarin Presents Interim Data Treatment of MPS IIIB 2017-09-07T01:40:12+00:00

Donate Today!

2017-03-13T22:14:28+00:00

Donate Today! Helping us fulfill our mission of supporting families affected by MPS & related diseases and funding research for a cure is the greatest gift anyone can give. Interested in organizing a fundraising event for the Canadian MPS Society, please contact our head office, so we can assist you and help make your event [...]

Donate Today! 2017-03-13T22:14:28+00:00

New Brunswick Announces Rare Disease Plan!

2017-05-08T19:56:49+00:00

Rare diseases drug plan established 28 July 2014 FREDERICTON (GNB) – The provincial government has established the New Brunswick Drugs for Rare Diseases Plan which will provide assistance to those with certain rare diseases who face high drug costs. “The cost of drugs to treat rare diseases can sometimes reach a million dollars per year per [...]

New Brunswick Announces Rare Disease Plan! 2017-05-08T19:56:49+00:00

MPS IV A Families in the News!

2017-05-08T19:58:47+00:00

MPS IV A Families in the News! Calgary’s Barb Larson appeared on AM630 CHED’s “Tencer and Grose” show in Edmonton, Alberta on July 9 to talk about her daughter Savannah’s journey with MPS IVA, Health Canada approval of VIMIZIM and the need for publicly funded access to treatment. Listen to the interview here: https://soundcloud.com/#630ched/tg-july-9-hr2  (beginning at [...]

MPS IV A Families in the News! 2017-05-08T19:58:47+00:00

Cornwall family’s spirit gets a lift

2017-05-08T20:01:30+00:00

Cornwall family's spirit gets a lift By Adam Brazeau CORNWALL, Ontario - A powerful act of generosity has given 10-year-old Melanie Bourdon the ability to reach new heights.                             The Cornwall girl was diagnosed with Morquio A Syndrome (MPS IVA) at the tender [...]

Cornwall family’s spirit gets a lift 2017-05-08T20:01:30+00:00