This Is A Custom Widget

This Sliding Bar can be switched on or off in theme options, and can take any widget you throw at it or even fill it with your custom HTML Code. Its perfect for grabbing the attention of your viewers. Choose between 1, 2, 3 or 4 columns, set the background color, widget divider color, activate transparency, a top border or fully disable it on desktop and mobile.

This Is A Custom Widget

This Sliding Bar can be switched on or off in theme options, and can take any widget you throw at it or even fill it with your custom HTML Code. Its perfect for grabbing the attention of your viewers. Choose between 1, 2, 3 or 4 columns, set the background color, widget divider color, activate transparency, a top border or fully disable it on desktop and mobile.

MPS Education

/MPS Education

Hunter Syndrome “Listening Session” Feb 4, 2020

Dear Members, We are writing to invite you to participate in an important phone call to help inform staff of the U.S. Food and Drug Administration (FDA) about the patient and caregiver experience of living with Hunter Syndrome. This is part of a “Listening Session” being co-hosted by FDA’s Patient Affairs Staff (PAS) and the National [...]

How to Deal with the Stress and Anxiety from Taking Care of a Child with MPS

It’s a parent’s responsibility to love and protect their children and keep them from harm’s way, allowing them to grow up strong and healthy.  That’s the normal way most people look at parenting.  But, what happens when their child is diagnosed with a chronic illness like MPS?  Aside from worry and gathering all the information and [...]

Symptoma.com – Helping Physicians To Make The Right Diagnosis For Their Patients.

Symptoma.com is a search engine for diseases. Patients and doctors enter symptoms and receive a list of matching causes - sorted by probability. Try it out for MPS related symptoms, such as "middle ear infections, bushy eyebrows": https://www.symptoma.com/en/search?query=middle%20ear%20infections%2C%20bushy%20eyebrows MPS I: https://www.symptoma.com/en/info/mucopolysaccharidosis-1 MPS II: https://www.symptoma.com/en/info/mucopolysaccharidosis-2 MPS III: https://www.symptoma.com/en/info/mucopolysaccharidosis-3 MPS IV: https://www.symptoma.com/en/info/mucopolysaccharidosis-4 MPS VI: https://www.symptoma.com/en/info/maroteaux-lamy-syndrome [...]

Morquio B patient/caregiver survey: First insight into the natural course of a rare GLB1 related condition

Morquio B disease (MBD) or Mucopolysaccharidosis type IV B (MPS IV B) is caused by particular GLB1 mutations specifically affecting the affinity of beta-galactosidase to keratan sulphate, resulting in dysostosis multiplex resembling Morquio A (MPS IV A) disease (GALNS deficiency). Additional neuronopathic features of GM1 II/III (juvenile/adult) gangliosidosis have been reported in some patients. The patient/caregiver online survey was aimed at [...]

Canadian Consensus Position Statement for the Diagnosis and Management of MPS II

June 15, 2018 VANCOUVER, BC – Today, the Canadian MPS Society issued a national consensus statement that provides updated Canadian guidelines for the management of patients with MPS II. A consensus meeting was held in Toronto, Ontario, including a multidisciplinary group of experts in the management of patients with MPS II. The group reviewed available published guidelines [...]