This Is A Custom Widget

This Sliding Bar can be switched on or off in theme options, and can take any widget you throw at it or even fill it with your custom HTML Code. Its perfect for grabbing the attention of your viewers. Choose between 1, 2, 3 or 4 columns, set the background color, widget divider color, activate transparency, a top border or fully disable it on desktop and mobile.

This Is A Custom Widget

This Sliding Bar can be switched on or off in theme options, and can take any widget you throw at it or even fill it with your custom HTML Code. Its perfect for grabbing the attention of your viewers. Choose between 1, 2, 3 or 4 columns, set the background color, widget divider color, activate transparency, a top border or fully disable it on desktop and mobile.

Venture Through Life Blog

/Venture Through Life Blog

My Sister Jessica

Written and presented by Christina Gentle at the 2018 RARE Gala GalaSpeech Hi everyone, thanks for being here tonight. I’m Christina, Jessica Gentle’s sister. If you were at the Gala last year you might remember the great speech she gave about what it’s like to live with MPS 1, which is also known as Hurler Syndrome. [...]

Sanfilippo and How it Affects My Family

Written by Hannah Gilhuis in the spring of 2014. Imagine if you couldn’t express yourself in the way others around you could. That is what it is like for my siblings Rachel and Mathew, who are living with Sanfilippo Syndrome. How this disease works?  Well we all have enzymes in our bodies.  Some are supposed to [...]

Living life successfully with Morquio A

Hello Everyone,   My name is Natasha Kaweski and I have MPS IVA (Morquio A).  I was diagnosed with Morquio syndrome when I was one and my brother, Damien, was three.  My parents noticed that Damien was not growing as most toddlers do, and so they took him to the doctors who then suggested that I [...]

Learning To Be Open

Dear reader, My name is Lianne Bankert. You may have heard of my brother Matthew and sister Kerrin, as well as my parents Ralph and Cathy. We live in Port Colborne, ON.  My brother and sister were diagnosed with MPS IIIA, and for that reason, my parents decided to adopt me from China when I [...]

Proud to Represent TeamMPS!!

On October 21st, I participated in the Scotiabank Marathon (and no, I didn’t run the Marathon… I did a measly 5km) alongside my fiancé and a few great friends.  This was my first time participating in a fundraiser for the Canadian MPS Society as an adult, and I can say that I have never been more [...]

My Experience with MPS

When I was born, my mother noticed a small bump on my back. They said I was fine and so, my mother had another child, my brother. Nevertheless, my mother felt something might be wrong… I was easily tired of walking and standing up. The bump didn’t go away. When I was four, my brother and [...]

Introducing Venture through Life

 Hello everyone! We are very pleased to welcome you our special blog Venture through Life. This project, very dear to our hearts, has been a long time in the making and we’re eager to get this journey started. We are both members of the Canadian MPS Society and have been for many years. We will be writing [...]