Support for families. Research for a cure.
Our support and education programs assist those affected in managing the diagnosis and progression of these rare, often devastating, disorders. Funds raised through donations and special events help fund research that provides hope for a brighter future for all children born with lysosomal diseases.
Current News and Events
Click to watch the video describing early symptoms of MPS I. https://youtu.be/h111oEHS7-c
Click to watch the video of Canadian MPS I parents where they share their stories about the diagnostic journey of their children. https://youtu.be/tKflBtR6iYI