Updated September 2014


Our national family conferences provide families an opportunity to learn more about new research, treatments and care strategies, and to meet with other families, share experiences, and form life-long friendships. These conferences take place every two years, as do international symposia on MPS & related diseases. In an effort to provide more opportunities for interaction, we are hosting regional meetings throughout the year, as well as inviting our members to attend meetings organized by other organizations with similar goals.  

National Conferences


2014 National Family Conference
July 25-27, 2014

Our 2014 National Family Conference took place at a beautiful new location this year at the Delta Bow Valley in Calgary, AB. The conference was a wonderful opportunity for affected families to connect, learn, have some fun, and celebrate the Canadian MPS Society's 30th Anniversary!

Click on the links below to view the conference presentations:

MPS diseases and their management: an overview - Dr. Aneal Khan
An update on current clinical studies: what you should know right now about on-going research - Dr. Lorne Clarke
Research on the horizon: emerging trends and the difference research funding will make in creating brighter futures - Dr. Lorne Clarke
Soft bones? Snoring and Stature: Defining the Quebec Morquio phenotype - Dr. John Mitchell
Living & coping with MPS - Kim Frye
Parenting kids with MPS - Kate Delaney
Transition to adulthood: Being Your Own Boss (BYOB) - Deborah Thul
Behavioural Management - Jerry Bennet
MPS IV A update - Dr. John Mitchell with Ryan Clarke
BYOB (for youth 14-21): Youth Self Management Assessment Checklist - Deborah Thul
The Drug Approval Process: Understanding the basics - Ryan Clarke
Health Technology Assessment: Understanding the basics - Dr. Devidas Menon


2012 National Family Conference
July 27-29, 2012

2012 Conference Group Photo

Our 2012 National Family Conference took place once again at the Nottawasaga Inn in Alliston, Ontario from July 27-29 and provided an opportunity for affected families to meet each other, learn from experts, and have a great time together at this beautiful family resort!

Click on the links below to view the conference presentations:

2012 Conference - Kids' Program

2010 National Family Conference
July 23 - July 25, 2010

Our 2010 National Family Conference took place at the Nottawasaga Inn in Alliston, Ontario July 23-25, 2010. Thank you to everyone who attended! Click here to view slideshows of the children and speakers, and a special thanks to Laura Moldovan and her daughter for acting as volunteer photographers and for creating these beautiful pieces for all of us to enjoy. Click here to view the conference program. 

Please click on the links below to view or download selected conference presentations: 

International Symposia


The 13th International Symposium on MPS & Related Diseases will take place August 13-17 in Brazil. For more information, visit Click here to view our Symposium Travel Bursary Guidelines & Application Form. Deadline for applications is April 30, 2014.

The 12th International Symposium on MPS & Related Diseases took place June 28-July 1, 2012 in Noordwijkerhout, the Netherlands.  Check to view symposium presentations.

Canadian MPS Society executive director Kirsten Harkins gave a presentation in the Netherlands on "Access to Specialized Care in Canada". Click here to view the presentation and thanks to all Canadian MPS Society members who participated in the Society's "Access to Specialized Care Survey".

The 11th International Symposium on MPS & Related Diseases took place June 24-27, 2010 in Adelaide, South Australia. Please visit for more information and to view the symposium's presentations.

The 10th International Symposium on MPS & Related Diseases was hosted by The Canadian MPS Society in Vancouver in June of 2008.  Please view the slideshow on our homepage of the children and youth who attended, and click on the "Symposium" tab under "Support & Education" for links to all symposium presentations.

Regional Meetings

Vancouver/Ottawa: Join parents of children with rare diseases for free monthly parent meetings, hosted by the Rare Disease Foundation in the CFRI Building at BC Children's Hospital, or in Ottawa (check the RDF site for location information).  Click here to view the RDF's website and view its calendar of upcoming meetings. Contact Rosemarie Rupps, BC Children's Hospital Genetic Counsellor, at [email protected] for more information.

Click here to view a presentation given at the January 2013 RDF Vancouver meeting on "What Parents of Children with Rare Diseases Need to Know About Taxes"

On April 30th, 2011 the Society hosted a Prairie Provinces MPS/Pompe Meeting. This meeting provided an opportunity for those affected to meet other affected families, learn more about how to manage the disorder that affects their family, and share experiences.  This one-day event was organized in partnership with the Metabolic Disorders Clinic of the Alberta Children's Hospital and the Canadian Association for Pompe.