Seven years ago, the first Rare Disease Day was created in order to celebrate those living bravely with rare diseases and shed light on the many challenges they face on a daily basis. It's clear that those challenges can only be overcome by working together as a global community toward increased education, support, innovatiive research, and policies that allow access to therapies of all kinds. Watch the official video and be inspired by all who are "joining together for better care".
Show you care! Please sign this petition to encourage the Honourable Rona Ambrose to approve the Federal Orphan Drug Regulatory Framework so Canadians with rare diseases can receive the care they deserve. Over 3,500 have signed on so far...let's help push that number over 5,000 by the end of today!
Thanks for joining us in our vision of a brighter future for all those with MPS and other rare diseases.