Seven years ago, the first Rare Disease Day was held in order to celebrate those living with all kinds of rare diseases, in all corners of the world. Today, we commemorate this special day by "joining together for better care" - clearly, the many challenges faced by those living with rare diseases can only be overcome if we work together. Click here to watch the official 2014 World Rare Disease Day Video, and be inspired, as we are.
Show you care! Then, sign this petition to encourage the Honourable Rona Ambrose to approve the Federal Orphan Drug Regulatory Framework. Over 3,500 have already added their names - let's help push this over 5,000 by the end of the day.
Thanks for joining in our vision of a brighter future for all those living with MPS and all other kinds of rare diseases.