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Rare Disease Study: Experiences and Preferences of Parents of Children with Rare Diseases

Monday, February 03, 2014
Kirsten Harkins

Are you the parent of a child with a rare disease living in Calgary, Edmonton or Ottawa?

You are invited to share your experiences iwth the health care system as well as your preferences regarding genetic testing.

Please call Kathleen Charlebois at 1-855-398-6724 or email her at [email protected] for more information.

An honorarium will be provided to all participants.