Support

The Society supports public awareness campaigns - like our Canadian MPS Jeans Days - develops, publishes, and distributes a variety of educational materials, issues press releases, and maintains this website with important updates on the Canadian MPS Society's news, events and links to our international sister organizations.  The Society works with the International MPS Network to raise awareness of MPS diseases through International MPS Awareness Day, which takes place annually on May 15th.

Family Conferences

Our biennial conferences give affected families and medical professionals an opportunity to meet and share information and experiences with each other. 

Our most recent familiy conference took place at the Nottawasaga Inn just north of Toronto, Ontario, from July 27-29, 2012.  Please click on "Meetings & Conferences" to view or download selected presentations, and visit our facebook page to view all the incredible photos taken during our very special weekend.

Our most recent family conference took place at the Nottawasaga Inn from July 23-25, 2010.  Please visit our "Meetings & Conferences" page to view or download selected presentations from our conference.

Regional Meetings

The Society hosts a variety of local and regional meetings throughout the year, and also has funding available to member families who wish to organize a social gathering in their community.  Please contact the Society for more information. 

Our most recent regional meeting took place in Calgary, Alberta on April 30th, 2011

International MPS Symposia

The Society hosted the 10th International Symposium on MPS & Related Diseases in Vancouver in June of 2008.  All scientific sessions from the Vancouver Symposium are available for viewing and all family session presentations are available for download.  Click on the symposium tab under "Events" for more information. 

The most International MPS Symposium took place in The Netherlands in June 2012. Please visit our "Meetings & Conferences" page for updated information, and a link to the symposium's website, which includes presentations for download.

The 2010 International Symposium on MPS & Related Diseases took place in Adelaide, South Australia from June 24-27, 2010.  Please visit our "Meetings & Conferences" page for a link to view and download conference presentations. 

Publications

The Society publishes a variety of educational booklets relating to MPS and its management.  Please visit our online store, or download our Order Form (PDF Format) to order resources. We also publish a quarterly newsletter called the Connection, which is mailed to current members and is also available for download (click on "Publications" under "Support & Education").

NEW! The Society has published Family Resource Binders for MPS I and MPS II, and these are available at no charge to Society members affected with these diseases.  Please contact the Society's head office to receive a copy. 

NEW! Educational Video

The Society has produced an educational video which is available for viewing by clicking here. Please contact the Society to request a DVD containing the educational video as well as a new fundraising video.

Canadian MPS Society Jeans Days

CANADIAN MPS JEANS DAYS TAKE PLACE THE FIRST FRIDAY OF OCTOBER ANNUALLY.  PLEASE CONTACT THE SOCIETY FOR MORE INFORMATION ON HOLDING A JEANS DAY IN YOUR COMMUNITY ON OCTOBER 2 OR ANY DAY!

Jeans Day stickers are "sold" at Canadian MPS Jeans Day events for a minimum donation of $1.00.  The Society will send you as many stickers as you neeed for your event, as well as posters with blank spaces to fill in your event's date and the amount of your recommended donation.  The following files are provided or promoting your event.  Print or email as many as you'd like!

Click here to download a Canadian MPS Jeans Day poster.
Click here to download a 8X11 Canadian MPS Jeans Day poster as a pdf.
Click here to download a 8X11 Canadian MPS Jeans Day poster as a jpeg.
Click here to download the Canadian MPS Jeans Day sticker image/logo.

Hunter Disease (MPS II) eClinic

This amazing interactive resource was developed by the Lysosomal Research Group at Sick Kids Hospital in Toronto, and launched at the International MPS Symposium in Vancouver in June 2008.  Users need Flash Player installed on their computers in order to be able to view the program, and should remember NOT to use the browser back button.  Check it out at:

Lysosomal Research Group:

www.lysosomalstorageresearch.ca

Direct link to the eClinic (including newly-created Japanese version):

http://www.lysosomalstorageresearch.ca/index.php?option=com_content&view=category&layout=blog&id=19&Itemid=18

Join the Search for MPS (Canada)

Join the Search is a campaign the Canadian MPS Society launched in the summer of 2013, with a goal of raising awareness of the early signs and symptoms of MPS amongst Canadian pediatricians. Early diagnosis is the key to better outcomes, so we're hoping pediatricians will add MPS to their "differential diagnosis". Click here to visit the Join the Search website (available in English and French) and encourage your physicians to sign up and "join the search"!