International MPS Awareness Day: Events and More!
Every year May 15 is observed internationally, to raise awareness against the rare disease, mucopolysaccharidoses (MPS). MPS are rare genetic disorders in children and adults caused by the absence of a specific enzyme. There are 7 types of MPS. It is estimated that 1 in every 25,000 infants born will have an MPS disorder. MPS conditions can affect nearly every organ in the body and can cause death unless treated early. Knowing the signs and symptoms can help identify and diagnose individuals living with MPS. By raising awareness on MPS Awareness Day, the international community fights to accelerate early diagnosis, access to the care and treatment.
The Canadian MPS Society is organizing a number of events through the month of May, to raise awareness and honor those living with this condition. Please see below on how you can participate and support.
#TuesdayTakeover with Rare Revolution Magazine
The Canadian MPS Society is pleased to partner with Rare Revolution Magazine and participate in a social media #tuesdaytakeover on May 4, 2021. Follow the Rare Revolution Magazine’s social media channel to learn more about MPS and the Canadian MPS Society. Support this campaign and help spread the word by sharing the posts using #tuesdaytakeover, #CanMPSSociety and #RareRevolution.
Member Highlight Series: Become MPS Aware
All along the month of May, the Canadian MPS Society will be sharing MPS related educational posts on all our social media channels. Get to know about MPS and how you can help by following us on Facebook, Twitter and Instagram.
Please like and share our posts throughout the month of May to help raise awareness for MPS.
Lighting Up Canada for MPS
Watch out as iconic landmarks across Canada light up in blue and yellow on and leading up to May 15, International MPS Awareness Day. We extend our heartfelt gratitude to all the illuminating partners for extending their support to raise awareness for MPS across Canada.
Calgary Tower; 15 May, 2021
City Hall of Lethbridge; 15 May 2021
City Hall of Red Deer; 15 May 2021
Edmonton Bridge; 15 May, 2021
McMahon Stadium; 15 May, 2021
Bastion, Nanaimo; 15 May, 2021-17 May, 2021
BC Place, Vancouver; 13 May 2021
Bloedel Conservatory, Vancouver; 15 May, 2021
Canada Place Sails of Light, Vancouver; 15 May, 2021
Fitzsimmons Covered Bridge, Whistler; 15May, 2021
Port Moody City Hall; 15 May 2021
Science World at TELUS World of Science, Vancouver; 14 May, 2021 (Cancelled due to maintenance)
Vancouver Convention Centre’s District Markers & Olympic Cauldron; 13 May 2021
Victoria Street Bridge; 15 May 2021
Brant Street Pier, Burlington; 15 May 2021
Canada Life, London and Toronto; 15 May 2021
City of Cambridge Sign; 15 May 2021
City Hall of Kingston; 15 May 2021
City Hall of London; 14 May to 16 May 2021
City Hall clock tower, City of Brampton; 15 May 2021
CN Tower, Toronto; 15 May 2021
Craig’s Crossing (Pedestrian Bridge), Downtown Cambridge; 15 May 2021
Fred A. Lundy Bridge, Newmarket; 14 May 2021
Hamilton Signature Sign; 15 May 2021
JA Taylor Building at Wellington and Dundas; 14 May to 16 May 2021
Mississauga Civic Centre Clock Tower, 13 May 2021
Niagara Falls; 15 May 2021 at 9:45 p.m. EST
Riverwalk Commons, Newmarket; 14 May 2021
RBC Place, London; 14 May to 16 May 2021
Toronto 3D Sign; 15 May 2021
Town Hall, Town of Oakville; 13 May 2021
Welland Canal Bridge 13, Welland; 15 May 2021
SaskTel Centre, Saskatoon; 15 May 2021
Note: Due to the COVID-19 pandemic, various Health and Safety restrictions are in place across the provinces in Canada. Please follow public health regulations at your region while visiting the landmark illuminations.
Ignite Hope for MPS
Join us and the iconic landmarks in Canada to Ignite hope for MPS. Show your support and raise awareness for MPS by lighting up your home, driveway, sidewalk, garden, office, and neighborhood in blue and yellow. Take pictures of your illuminations and share it on social media with the hashtags #Ignitehope #MPSDay #Chasethesigns #NBS4MPS
Tag @CanMPSSociety in all your Twitter & Facebook, and @canadian.mps.society on Instagram posts.
Wear your Canadian Tuxedo and Show your Support
Wear a blue and/or yellow Denim shirt, jacket, jeans or pair them up on May 15 and show your support for MPS. Take pictures and share it on social media with the hashtags #Ignitehope #MPSDay #Chasethesigns #jeansday #NBS4MPS
Tag @CanMPSSociety in all your Twitter & Facebook, and @canadian.mps.society on Instagram posts
Ignite Hope and Win!!!
Share with us a picture of yourself in jeans with your MPS Day illuminations or the iconic landmarks in blue and yellow, or any of your creation (write up, painting, etc.,) supporting MPS and get entered for a chance to win exciting prizes.
Share your pictures on social media, and email your pictures at email@example.com to get entered into the raffle. Last date for entry May 20th, 2021.
Thank you to our MPS Day sponsors and supporters: