See the welcome team at the front table,  make sure you get your nametag & lootbags.

Join us for some beverages and a lite hors d’oeuvres (snacks) get to know some of the participants.

Join in on a connection group session for MPS families.  Led by Katrina!

This is a special We Care session for the NextGen population – our MPS youth; no parents allowed!  Led by Sarah & Jessica

This is for anyone that doesn’t want to attend WeCare and would like to continue the evening.

Breakfast, buffet style

Children’s Program Drop-off, meet the organizers and the volunteers.

Opening Remarks (3 speakers) 
Melissa Bilodeau – Welcome 
Mississauga. School of Music – National Anthem 
Mary Bone – Announcements 

Updates from 3 Pharma companies

Join Dr. John Mitchell for an informative session examining the complex challenges of growth and pubertal development in patients with mucopolysaccharidosis (MPS) disorders. 

The session will conclude with a 5-minute update on ongoing clinical trials in which Dr. Mitchell is actively involved, providing attendees with the latest insights into emerging treatments and research developments in the field of orphan diseases.

A brief introduction on gene therapy and present on the completed trial for MPS IIIA (Sanfilippo type A).

This presentation will cover the development of the Canadian MPS Registry as a partnership between the Canadian MPS Society, the INFORM RARE research network, and the Children’s Hospital of Eastern Ontario Research Institute. Our experience with the registry to date will be discussed as well as our future plans. There will be opportunities for patients and caregivers to share their ideas and priorities for this patient registry moving forward.

Understand how trials work and what they could mean for your family’s future.

Interactive Session with Mary Bone

The transition from pediatric to adult care brings about a time of complexity for families of individuals with chronic medical conditions. We will aim to address; goals for supporting independence, self-advocacy encouragement and working with, rather than against, the unique developmental phase of adolescence.

 

Don’t forget to pick up your children!

Enjoy the delightful sounds of the Mississauga School of Music ensemble before they transfer into the gala room to play strings inside for another 15 minutes until dinner is open.

Proudly celebrating the Canadian MPS Society’s remarkable 40-year legacy of compassion and support.

This milestone evening features a dinner, live music and exceptional entertainment that promises to delight and inspire.

Our star-studded entertainment lineup features

• Herbie Kuhn, the iconic voice of the Toronto Raptors and the Toronto Argonaughts, bringing his legendary energy and passionate support for MPS kids as our emcee;
• the extraordinary Simon Zenker, a multi-talented master of magic and juggling who will captivate guests during reception and dinner before delivering a mesmerizing performance that will leave everyone spellbound;
• and phenomenal French Canadian folk singer Henri Audet, whose soulful musical storytelling will add cultural richness to our night.

Breakfast, buffet style

A look at how easily we can grow our connections using social media etc.  Content needed, how to submit…

Marilyn Marchment & Mary Bone

Call to order – Melissa Bilodeau, Chair

Financials – Terry Byrne, Treasurer

Vote on auditors

Call for new board members. – Marilyn Marchment, Vice Chair

Confirming the slate of board members, Julie Lariviere, Secretary

Adjournment