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Keep up with what’s happening in the MPS community, industry and research.
News Feed
News from the MPS Community, industry and research.
To view posts by category, click on your chosen category which appears after the date in any of the posts.
We Care April
UPCOMING 29 April. We Care monthly gathering for MPS caregivers
Canadian Dental Care Plan
Did you know that The Canadian Dental Care Plan (CDCP) is now in operation which can make the cost of dental care more affordable for eligible...
IMPSN MAY 15 CALL OUT
Time is precious for all of us, but especially for those living with Mucopolysaccharidosis (MPS). This year's International MPS Day theme—"It's...
May is the month for MPS awareness!
UPCOMING 15 May, MPS Awareness Day
2025 National Family Conference
UPCOMING 18-20 July: The National Family Conference taking place in July 2025 will coincide with the Society’s 40 Anniversary Gala.
SickKids I-InTERACT-North program
SickKids, Toronto has expanded their innovative mental health support program, specifically designed with MPS families in mind. They understand the...
Using Easy To Understand Language In Clinical Trial Summaries For Participants
CommuniKIDS – a toolkit to help researchers convey clinical trial results back to participating youth and their families in plain easy to understand language.
Denali MPS IIIA Clinical Study
December 12, 2023 Dear Sanfilippo syndrome Type A Community, We are pleased to share that a Phase 1/2 clinical study of DNL126, an investigational...
Clinical Trial RGX-111 for MPS I Halted
We are disappointed to share that REGENXBIO will no longer be moving forward with the development of RGX-111 for the treatment of MPS I.
National Strategy for Drugs for Rare Diseases
Health Minister Jean-Yves Duclos announced measures for the first-ever National Strategy for Drugs for Rare Diseases, investing up to $1.5 billion over three years.