Canada’s Drug Agency 2024-25 Annual Report

Canada’s Drug Agency 2024-25 Annual Report

Canada’s Drug Agency 2024–2025 Annual Report, Shaping Change, is here. The theme this year, “Shaping Change,” aligns with our new strategic plan and reflects on a year of bringing to life our new name and enhanced role as Canada’s Drug Agency (CDA-AMC). In addition to...

Preparing for End-of-Life

Preparing for End-of-Life

MPS families carry a weight that others may never fully understand. From the moment of diagnosis, they're asked to hold two truths simultaneously: to hope fiercely for their children while also confronting the reality that MPS can shorten their lives. It's a burden...

Health Canada’s special drug access program

Health Canada’s special drug access program

Did you know...If you're a health care professional, you can request a drug that is not available for sale in Canada through the Special Access Program (SAP). Your request must be for treating a patient with a serious or life-threatening condition where conventional...

Volunteer for the 2025 National Family Conference

Volunteer for the 2025 National Family Conference

Be Their Hero for a Day: Help Children with Rare Disorders Thrive! Volunteer with the Canadian MPS Society's National Family Conference| July 18-20 | Mississauga We're seeking compassionate volunteers to support children with Mucopolysaccharidosis (MPS)—a rare...

2025 AGM

2025 AGM

Canadian MPS Society Annual General Meeting Date: Sunday, July 20, 2025 Time: 11:00 AM - 12:30 PM EST inclusive of Annual Report review Location: Hilton Mississauga/Meadowvale, ON The 2025 Canadian MPS Society Annual General...

MPS Day BBQ and Fundraiser – May 16

MPS Day BBQ and Fundraiser – May 16

If you're close to Laval, Quebec, join in the fun and connect with the community at Pharmacie Chabot Et Vermette's annual BBQ Fundraiser for MPS Awareness month.📅 Friday, May 16th⏰ 12PM - 2PM📍 Stationnement arrière de la Polyclinique de Fabreville (back parking lost...

We Care June

We Care June

UPCOMING JUNE 5: We invite you to our last We Care virtual gathering before our summer break. This special session focuses on reconnecting as a family and truly unwinding during the summer months ahead. Connect with other MPS families, exchange summer plans, and...