Canada’s Drug Agency 2024-25 Annual Report
Canada’s Drug Agency 2024–2025 Annual Report, Shaping Change, is here. The theme this year, “Shaping Change,” aligns with our new strategic plan and reflects on a year of bringing to life our new name and enhanced role as Canada’s Drug Agency (CDA-AMC). In addition to...
Preparing for End-of-Life
MPS families carry a weight that others may never fully understand. From the moment of diagnosis, they're asked to hold two truths simultaneously: to hope fiercely for their children while also confronting the reality that MPS can shorten their lives. It's a burden...
Health Canada’s special drug access program
Did you know...If you're a health care professional, you can request a drug that is not available for sale in Canada through the Special Access Program (SAP). Your request must be for treating a patient with a serious or life-threatening condition where conventional...
Volunteer for the 2025 National Family Conference
Be Their Hero for a Day: Help Children with Rare Disorders Thrive! Volunteer with the Canadian MPS Society's National Family Conference| July 18-20 | Mississauga We're seeking compassionate volunteers to support children with Mucopolysaccharidosis (MPS)—a rare...
2025 AGM
Canadian MPS Society Annual General Meeting Date: Sunday, July 20, 2025 Time: 11:00 AM - 12:30 PM EST inclusive of Annual Report review Location: Hilton Mississauga/Meadowvale, ON The 2025 Canadian MPS Society Annual General Meeting will be held immediately following...
MPS Day BBQ and Fundraiser – May 16
If you're close to Laval, Quebec, join in the fun and connect with the community at Pharmacie Chabot Et Vermette's annual BBQ Fundraiser for MPS Awareness month.📅 Friday, May 16th⏰ 12PM - 2PM📍 Stationnement arrière de la Polyclinique de Fabreville (back parking lost...
May is the month for MPS awareness!
UPCOMING 15 May, MPS Awareness Day
We Care June
UPCOMING JUNE 5: We invite you to our last We Care virtual gathering before our summer break. This special session focuses on reconnecting as a family and truly unwinding during the summer months ahead. Connect with other MPS families, exchange summer plans, and...
Travel Funding
Did you know that you can save on travel by applying for companion or support person travel arrangements with Canadian airlines and VIA Rail?
Caring for Caregivers
Caregivers Need Care Too! Check out some tools…