New Diagnosis

Has your child recently been diagnosed with MPS or a related disease, or is your child undergoing diagnostic testing? We understand the information you have received may be new and confusing, but please know we are here to help and can provide you with information and support to help you through this journey.

Here are some links which you might find useful to begin with:


Watch the video of Canadian MPS I parents sharing their stories about the diagnostic journey of their children.

For more assistance, get in touch with us by emailing or by calling our toll-free number 1-800-667-1846.