by adminmps | Mar 29, 2022 | Uncategorized
This will be held on the evening of Saturday, July 22, 2023 in conjunction with the National Family Conference. Head to our National Family Conference page for more details!
by adminmps | Mar 28, 2022 | Past Event
This popular event takes place every 2 years. This year’s is scheduled for July 21 – 23, 2023 in Calgary Alberta. See our National Conference page for more...
by adminmps | Mar 4, 2022 | Clinical Trials, News, Research
MPS I (Hurler syndrome) Orchard Therapeutics Announces Interim Data for OTL-203 Showing Positive Clinical Results in Multiple Disease Manifestations of Mucopolysaccharidosis Type I Hurler Syndrome (MPS-IH). Read the full report > SiglionTherapeutics, Development of a...
by adminmps | Feb 16, 2022 | News, Research
Read Gianna’s story and how it changed the course of her life. Newborn screening gave Gianna a head start in her fight against MPS I. Today marks the 1-year anniversary of Gianna’s bone marrow transplant. So amazing!
by adminmps | Jan 13, 2022 | Uncategorized
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