Caring for a child with a rare disease like MPS can feel isolating at times – but you don’t have to go it alone. We’re bringing together a compassionate group of parents and caregivers who have been there and can offer a listening ear, share advice,...
We want to extend our deepest gratitude to everyone who attended, volunteered and donated to the MPS Cup event supporting those affected by MPS. Your participation made our event a huge success. If you missed the event but would still like to contribute, donations can...
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another, facilitated by Angie...
$1.5 Billion Canadian National Strategy for Drugs for Rare Diseases The Health Minister Jean-Yves Duclos announced measures in support of the first-ever National Strategy for Drugs for Rare Diseases, with an investment of up to $1.5 billion over three years. This will...
Takeda has announced a Post-Trial Access program for patients currently enrolled in extension trials for TAK-609, a treatment for MPS II Hunter syndrome. This program will provide continued access for patients who have benefited from treatment on existing studies....
