This popular event takes place every 2 years. This year’s is scheduled for July 21 – 23, 2023 in Calgary Alberta. See our National Conference page for more...
Our bi-annual conferences give families affected by MPS & related diseases an opportunity to learn about new research, treatment and care, and to share information and experiences with other affected individuals and families. The event was enjoyed virtually on...
As part of the Virtual Education and Connection Series, listen to our very special speakers talk about their unique and resilient stories regarding a rare disease...
Townhall Tuesday – August 25, 2020 Back to School During COVID-19 Back to School During COVID-19. Featuring Dr. Lorne Clarke, Dr. Cheryl Rockman-Greenberg & Dr. Eva...
Written and presented by Christina Gentle at the 2018 RARE Gala “Hi everyone, thanks for being here tonight. I’m Christina, Jessica Gentle’s sister. If you were at the Gala last year you might remember the great speech she gave about what it’s like to live with...
