This Is A Custom Widget

This Sliding Bar can be switched on or off in theme options, and can take any widget you throw at it or even fill it with your custom HTML Code. Its perfect for grabbing the attention of your viewers. Choose between 1, 2, 3 or 4 columns, set the background color, widget divider color, activate transparency, a top border or fully disable it on desktop and mobile.

This Is A Custom Widget

This Sliding Bar can be switched on or off in theme options, and can take any widget you throw at it or even fill it with your custom HTML Code. Its perfect for grabbing the attention of your viewers. Choose between 1, 2, 3 or 4 columns, set the background color, widget divider color, activate transparency, a top border or fully disable it on desktop and mobile.

Everything Else MPS

/Everything Else MPS

Fund Development Director Position – Part-time

The Canadian MPS Society is seeking a Fund Development Director to build and manage the fundraising strategy and activities of the organization. The successful candidate will be driven, ambitious, excellent at interpersonal communications, experienced in major gift and/or foundation fundraising. Please view the attached position description. Fund Development Officer P:T Jan 2019 Email resume and cover [...]

My Sister Jessica

Written and presented by Christina Gentle at the 2018 RARE Gala GalaSpeech Hi everyone, thanks for being here tonight. I’m Christina, Jessica Gentle’s sister. If you were at the Gala last year you might remember the great speech she gave about what it’s like to live with MPS 1, which is also known as Hurler Syndrome. [...]

Sanfilippo and How it Affects My Family

Written by Hannah Gilhuis in the spring of 2014. Imagine if you couldn’t express yourself in the way others around you could. That is what it is like for my siblings Rachel and Mathew, who are living with Sanfilippo Syndrome. How this disease works?  Well we all have enzymes in our bodies.  Some are supposed to [...]

How to Deal with the Stress and Anxiety from Taking Care of a Child with MPS

It’s a parent’s responsibility to love and protect their children and keep them from harm’s way, allowing them to grow up strong and healthy.  That’s the normal way most people look at parenting.  But, what happens when their child is diagnosed with a chronic illness like MPS?  Aside from worry and gathering all the information and [...]

Living life successfully with Morquio A

Hello Everyone,   My name is Natasha Kaweski and I have MPS IVA (Morquio A).  I was diagnosed with Morquio syndrome when I was one and my brother, Damien, was three.  My parents noticed that Damien was not growing as most toddlers do, and so they took him to the doctors who then suggested that I [...]

Give the Gift of Hope! Donate today to the Annual Fundraiser

Help us help. Our support and education programs assist those affected in managing the diagnosis and progression of these rare, often devastating, disorders. Funds raised through donations and special events help fund research that provides hope for a brighter future for all children born with lysosomal diseases. Donate to the Annual Fund Click this link to [...]

View Jessica Gentle’s Presentation

In May of 2017, Jessica Gentle spoke at our annual Ignite Hope Fundraising Gala and wowed everyone with her delightful presentation! PowerPoint - Jessica

Symptoma.com – Helping Physicians To Make The Right Diagnosis For Their Patients.

Symptoma.com is a search engine for diseases. Patients and doctors enter symptoms and receive a list of matching causes - sorted by probability. Try it out for MPS related symptoms, such as "middle ear infections, bushy eyebrows": https://www.symptoma.com/en/search?query=middle%20ear%20infections%2C%20bushy%20eyebrows MPS I: https://www.symptoma.com/en/info/mucopolysaccharidosis-1 MPS II: https://www.symptoma.com/en/info/mucopolysaccharidosis-2 MPS III: https://www.symptoma.com/en/info/mucopolysaccharidosis-3 MPS IV: https://www.symptoma.com/en/info/mucopolysaccharidosis-4 MPS VI: https://www.symptoma.com/en/info/maroteaux-lamy-syndrome [...]