by adminmps | Nov 21, 2023 | Uncategorized
Our 8-year-old daughter Anaïs has Morquio syndrome. Each additional year spent at her side makes us proud as parents. She is wise and mature beyond her years, with strengths like perseverance, determination, and living each day fully without fear. But as time passes,...
by adminmps | Nov 21, 2023 | Uncategorized
Our daughter Josephine was diagnosed with MPS 1 Hurler Syndrome on her first birthday. After a stem cell transplant at 18 months, she has been doing relatively well. However, she recently became self-conscious about looking and moving differently. She stared to...
by adminmps | Nov 21, 2023 | Uncategorized
When my son Elovic was diagnosed with MPS at age 3, I was in shock. It felt like my world was tearing at the seams. I was faced with so many unknowns and I wasn’t certain how to deal with everything that was being sent my way. That’s when I reached out to the Canadian...
by adminmps | May 4, 2023 | Uncategorized
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another, facilitated by Angie...
by adminmps | Mar 30, 2023 | Uncategorized
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another on March 15,...
by adminmps | Feb 27, 2023 | Uncategorized
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another on March 15,...
