Canadian MPS Society National Family Conference
This popular event takes place every 2 years. This year's is scheduled for July 21 - 23, 2023 in Calgary Alberta. See our National Conference page for more details!
Research Highlights from the 2022 WORLD Symposium:
MPS I (Hurler syndrome) Orchard Therapeutics Announces Interim Data for OTL-203 Showing Positive Clinical Results in Multiple Disease Manifestations of Mucopolysaccharidosis Type I Hurler Syndrome (MPS-IH). Read the full report > SiglionTherapeutics, Development of a...
The Importance of Newborn Screening
Read Gianna’s story and how it changed the course of her life. Newborn screening gave Gianna a head start in her fight against MPS I. Today marks the 1-year anniversary of Gianna's bone marrow transplant. So amazing!
2021 National Family Conference and Gala
Our bi-annual conferences give families affected by MPS & related diseases an opportunity to learn about new research, treatment and care, and to share information and experiences with other affected individuals and families. The event was enjoyed virtually on...
Resilience in Rare Diagnosis
As part of the Virtual Education and Connection Series, listen to our very special speakers talk about their unique and resilient stories regarding a rare disease diagnosis. https://youtu.be/l5ybp_PEtjM
Back to School During COVID-19
Find out what our specialists have to say on dealing with COVID-19 at school.
Christina Gentle at the 2018 RARE Gala
Written and presented by Christina Gentle at the 2018 RARE Gala "Hi everyone, thanks for being here tonight. I’m Christina, Jessica Gentle’s sister. If you were at the Gala last year you might remember the great speech she gave about what it’s like to live with MPS 1,...