May is the month for MPS awareness!

May 6, 2022 | News, Upcoming Event

Every year May 15 is observed internationally, to raise awareness against mucopolysaccharidoses (MPS).

MPS are rare genetic disorders in children and adults caused by the absence of a specific enzyme. There are 7 types of MPS. It is estimated that 1 in every 25,000 infants born will have an MPS disorder. MPS conditions can affect nearly every organ in the body and can cause death unless treated early. 

IT’S TIME TO CUT TO THE CHASE – A Global Campaign

Knowing the signs and symptoms can help identify and diagnose individuals living with MPS. By raising awareness on MPS Awareness Day, the international community fights to accelerate early diagnosis, access to the care and treatment. 

We are proud to partner with over 40 global organizations to raise awareness for MPS around the world. Together with our industry partners and within the International MPS network (IMPSN) we are rolling out a multichannel campaign “Chase the Signs” to help people identify the key MPS symptoms and to raise awareness of the urgency to reach a diagnosis. An early diagnosis means earlier treatment leading to better outcomes.

We will be posting animations, videos and social posts as part of this international campaign. For our message to go viral, we need it to be shared as widely as possible. Follow us on Facebook, Instagram or LinkedIn. Share our posts and help us CUT TO THE CHASE.

Find out more at MPS DAY – MPS Network

Learn more about the IMPSN here:  impsnetwork.org

Lighting up Canada for 15 May – MPS Day!

Iconic landmarks across Canada will light up in blue and yellow on and leading up to May 15, International MPS Awareness Day. We extend our heartfelt gratitude to all the illuminating partners for extending their support to raise awareness for MPS across Canada.

Join is in raising awareness by taking a selfie in front of one of the iconic landmarks and share on social media with the hashtags #CanMPSSociety #NBS4MPS #ChasetheSigns #MPSAwarenessDay.

Canada Place, Vancouver, BC
Niagara Falls, Canada
Science World, BC

Visit one of the many exciting iconic sites lighting up for MPS Day:

Alberta
City of Red Deer’s City Hall (from sunset)
Calgary Tower

British Columbia
BC Place, Vancouver (from sunset)
Canada Place Sails of Light, Vancouver
Fitzsimmons Creek Bridge, Whistler
Science World at TELUS World of Science, Vancouver (4-8pm PST on May 14)
Vancouver City Hall
Burrard Street Bridge
Victoria Street Bridge, City of Trail

Ontario
Brant Street Pier, Burlington 
City Hall Cambridge sign and pedestrian bridge (May13-15)
Civic Centre Clock Tower, Mississauga (from 8pm)
City Hall of Kingston 
CN Tower
Fred A. Lundy Bridge, Town of Newmarket 
Niagara Falls (10:15 pm EST for 15 minutes) See it on The Live Cam!
Ottawa Sign, York Street at Sussex Drive in the ByWard Market
Riverwalk Commons, Water Street, Town of Newmarket (from sunset) 
Toronto 3D Sign

Make MPS Day Your Way!

Can’t make it to one of the iconic sites? Show your support and raise awareness for MPS by setting up your own illuminations! Light up your home, driveway, sidewalk, garden, office, and neighborhood in blue and yellow. (A flashlight with blue and yellow balloons over the light works wonders.)

Take pictures of your illuminations and share it on social media with the hashtags #CanMPSSociety #NBS4MPS #IgniteHope #MPSAwarenessDay.

Post YOUR MPS Story and tag us @CanMPSSociety and we will share your story on our channels too.

FACEBOOK Takeover with Rare Revolution Magazine 

The Canadian MPS Society is pleased to partner with Rare Revolution Magazine and participate in a social media Facebook takeover on MPS Day, May 15. Follow the Rare Revolution Magazine’s social media channel to learn more about MPS and the Canadian MPS Society. Support this campaign and help spread the word by sharing the posts using #CanMPSSociety and #RareRevolution. 

Canadian MPS Society: FacebookTwitterInstagram

Rare Revolution Magazine: FacebookTwitterInstagram 


Thank you to our MPS DAY Sponsors: