New Diagnosis

Beginning your journey with MPS or related disease:

Have you or a family member recently been diagnosed with MPS or a related disease, or are you or your child undergoing diagnostic testing? We understand the information you have received may be new and confusing, but please know we are here to help and can provide you with information and support to help you through this journey.

Please do get in touch with us by emailing or by calling our toll-free number 1-800-667-1846.

Here are some links which you might find useful to begin with: