Support & Education
In the News
Family Foundations Fund Critical Study Necessary For Clinical Trials
Thanks to Genzyme for celebrating International MPS Awareness Day
Icahn School of Medicine at Mount Sinai and Bene Pharmachem Gmbh
Q & A with Dr. Emil Kakkis in celebration of International MPS Awareness Day
Thanks to Lysogene for its International MPS Awareness Day Initiatives
Jasper More (MPS VI)
May 15th was International MPS Awareness Day!
How did you celebrate? Please send us photos for our summer newsletter!
Thanks to everyone who joined our team for the 11th Annual MPS CUP Fantasy Hockey Game & Gala on May 4th - what a fabulous event it was! Visit
to view photos.
And thanks to all who up for the Manulife Financial Cove Fun 5K & Relay for MPS on April 28th - we'll look forward to seeing you again next year!
to view presentations from our 2012 National Family Conference.
to watch our Society's educational video.
Support for families. Research for a Cure.
And click on the slideshow below to view images of children and youth
who inspire us all to believe in a brighter future.
In the News
Pentosan Polysulfate: A Novel Therapy for the Mucopolysaccharidoses
Hopes and hurdles in the fight for Isaac and his rare disease
Despite rare disease, Carrollton college student can look ahead now
Canadian MPS Society featured in The National Post!
Canadian Organization for Rare Disorders Welcomes Announcement of Orphan Drug Framework
(US) National MPS Society's 27th Annual National Family Conference
Thursday, October 24, 2013 1:13 PM - Saturday, October 26, 2013 1:13 PM