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Compassion in Action: Simple, Creative Ways to Support a Loved One with a Chronic Condition

Compassion in Action: Simple, Creative Ways to Support a Loved One with a Chronic Condition

Sep 2, 2026 | News, Uncategorized | 0 Comments

Jennifer McGregor | Public Health Library | February 19, 2026 Living with a chronic condition reshapes daily life — not just for the individual but...

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Name OUR Dragonfly | Nom NOTRE Libellule

Name OUR Dragonfly | Nom NOTRE Libellule

Apr 1, 2026 | News | 0 Comments

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2025 AGM

2025 AGM

Jun 9, 2025 | News, Upcoming Events | 0 Comments

Canadian MPS Society Annual General Meeting Date: Sunday, July 20, 2025 Time: 11:00 AM - 12:30 PM EST...

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May is the month for MPS awareness!

May is the month for MPS awareness!

May 12, 2025 | News, Past Event | 0 Comments

UPCOMING 15 May, MPS Awareness Day

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Canadian Dental Care Plan

Canadian Dental Care Plan

Mar 4, 2025 | News, Resources | 0 Comments

Did you know that The Canadian Dental Care Plan (CDCP) is now in operation which can make the cost of dental care more affordable for eligible...

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IMPSN MAY 15 CALL OUT

IMPSN MAY 15 CALL OUT

Feb 25, 2025 | News, Uncategorized | 0 Comments

Time is precious for all of us, but especially for those living with Mucopolysaccharidosis (MPS). This year's International MPS Day theme—"It's...

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2025 National Family Conference

2025 National Family Conference

Jan 20, 2025 | Upcoming Events | 0 Comments

UPCOMING 18-20 July: The National Family Conference taking place in July 2025 will coincide with the Society’s 40 Anniversary Gala.

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SickKids I-InTERACT-North program

SickKids I-InTERACT-North program

Nov 25, 2024 | News, Resources | 0 Comments

SickKids, Toronto has expanded their innovative mental health support program, specifically designed with MPS families in mind. They understand the...

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Using Easy To Understand Language In Clinical Trial Summaries For Participants

Using Easy To Understand Language In Clinical Trial Summaries For Participants

Jan 22, 2024 | News, Resources | 0 Comments

CommuniKIDS – a toolkit to help researchers convey clinical trial results back to participating youth and their families in plain easy to understand language. 

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Denali MPS IIIA Clinical Study

Denali MPS IIIA Clinical Study

Dec 13, 2023 | Clinical Trials, News, Research | 0 Comments

December 12, 2023 Dear Sanfilippo syndrome Type A Community, We are pleased to share that a Phase 1/2 clinical study of DNL126, an investigational...

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Uxbridge, ON L9P 0A3

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