Welcome to the Canadian MPS Society

Our Vision

All Canadians affected by MPS and related diseases are supported and empowered to live their best life.

We are here to help

Wherever you are on the disease journey we are here for you.

Newly Diagnosed

We can provide you with information and support to help you through this journey.

It’s About Time to Unite for MPS 

International MPS Day was in May, but everyday is an opportunity for our community to raise awareness and support for MPS disorders.

Your participation, no matter how big or small, makes a powerful impact for MPS families and children affected by these rare diseases.

When we spread awareness, we spread hope – hope for better understanding, accelerated research, and improved access to life-changing treatments.

Support For Families


Learn About MPS

Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body’s inability to produce specific enzymes  preventing cells from recycling waste. There are several different types of MPS…

Newly Diagnosed

Has your child recently been diagnosed with MPS or a related disease? We understand how overwhelming it may feel. Tap into our information and support to help you through this journey.

Become a Member

The MPS Community is one of the most supportive groups found amongst rare diseases. Members find connecting with the MPS community invaluable and benefit from shared experiences and resources. 

Our Stories

Explore our collection of stories and videos from people who have generously shared their experiences of living with MPS. Would you like to share you own experience? Contact us now!

MPS National Family Conferences


Connect with other MPS affected families, rare disease specialist and advocates at our Canadian MPS National Family Conferences which take place every other year. Families have found these life changing on many levels. The most recent one took place in July 21-23, 2023.

New Born Screening

The Canadian MPS Society advocates for MPS I-H to be included in newborn screening across Canada. It is imperative to ensure those diagnosed have the best prognosis, health outcomes and quality of life in their future. 

Latest News

We keep our eyes open and ears to the ground to keep our members abreast of what’s happening in the MPS community, industry and research in Canada and abroad.


A number of publications in English and French are available for download as well as educational videos to help you on the MPS journey.