by adminmps | Jun 30, 2022 | News, Resources
Courageous Parent Network has published a guide Communicating Effectively and Compassionately to Help Siblings Cope. It is written by a psychologist and grief counselor and includes tips from fellow parents. “From the time that their sibling is diagnosed with a...
by adminmps | Jun 30, 2022 | News
The Canadian MPS Society welcomes the news that the Government of Quebec has unveiled its policy for rare diseases which affect approximately 700,000 people in the province in order to improve the accessibility of health care and services adapted to the needs of...
by adminmps | Jun 17, 2022 | Clinical Trials, News, Research
Lysogene has just provided promising data from their clinical trials for the efficacy of Gene Therapy LYS-SAF302 in the treatment of MPS IIIA. Read Press Release >
by adminmps | Jun 17, 2022 | News, Resources
Titus and his family have made a series of videos to show what it’s like to grow up with Morquio (MPS IV). Find out more about Morquio Syndrome...
by adminmps | Jun 17, 2022 | News, Resources
Saving Ryan is the inspiring story by physician-scientist Dr. Emil Kakkis about his journey to develop a new, first-ever treatment for MPS. Hear about the great challenges getting grant and industry support for this rare disease despite the solid science behind doing...
