The Rare Sibling Experience: Sibshops Support

The Rare Sibling Experience: Sibshops Support

Listen to a talk about the sibling perspective and the support available with Emily Holl, the Director of the Sibling Support Project. Emily is a social worker, writer, trainer, and sibling. Over the past 16 years, she has provided workshops, training, and groups for...
Anaesthesia Recommendations For Rare Diseases

Anaesthesia Recommendations For Rare Diseases

Want to find out more about anaesthesia and how it relates to rare diseases? OrphanAnesthesia publishes anaesthesia recommendations for rare diseases in order to facilitate the work of anaesthesiologists and to improve patients’ safety. This a project of the...