Useful Links
Part of the Society’s mandate is to offer support and information to families affected by MPS and to encourage public awareness of MPS diseases. To this end, we’ve provided this list of links to potentially helpful websites.
Resources
Preparing for End-of-Life
MPS families carry a weight that others may never fully understand. From the moment of diagnosis, they're asked to hold two truths simultaneously:...
Health Canada’s special drug access program
Did you know...If you're a health care professional, you can request a drug that is not available for sale in Canada through the Special Access...
Travel Funding
Did you know that you can save on travel by applying for companion or support person travel arrangements with Canadian airlines and VIA Rail?
Caring for Caregivers
Caregivers Need Care Too! Check out some tools…
Canadian Dental Care Plan
Did you know that The Canadian Dental Care Plan (CDCP) is now in operation which can make the cost of dental care more affordable for eligible...
Home Funding
Did you know? ...that these programs exists to help people with home-related funding? You can apply for National Housing Strategy or other CMHC...
Educational Videos
A collection of educational videos to help understand what MPS is, the MPS journey and how the Canadian MPS Society can support MPS affected families in that journey.
The Importance of Early Diagnosis
Parent Vlogs: Our MPS I Diagnostic Journey
Matteo’s Story: The Importance of Newborn Screening
Why Fundraising Is Important To Advancing Treatment