When my son Elovic was diagnosed with MPS at age 3, I was in shock. It felt like my world was tearing at the seams. I was faced with so many unknowns and I wasn’t certain how to deal with everything that was being sent my way. That’s when I reached out to the Canadian...
November 8, 2023 Dear MPS I community, This afternoon REGENXBIO Press Release 8Nov2023, we announced a corporate restructuring that impacts our development of potential AAV gene therapies for MPS I. We are disappointed to share that REGENXBIO will no longer be moving...
Caring for a child with a rare disease like MPS can feel isolating at times – but you don’t have to go it alone. We’re bringing together a compassionate group of parents and caregivers who have been there and can offer a listening ear, share advice,...
We want to extend our deepest gratitude to everyone who attended, volunteered and donated to the MPS Cup event supporting those affected by MPS. Your participation made our event a huge success. If you missed the event but would still like to contribute, donations can...
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another, facilitated by Angie...
