by adminmps | Nov 21, 2023 | Uncategorized
Our daughter Josephine was diagnosed with MPS 1 Hurler Syndrome on her first birthday. After a stem cell transplant at 18 months, she has been doing relatively well. However, she recently became self-conscious about looking and moving differently. She stared to...
by adminmps | Nov 21, 2023 | Uncategorized
When my son Elovic was diagnosed with MPS at age 3, I was in shock. It felt like my world was tearing at the seams. I was faced with so many unknowns and I wasn’t certain how to deal with everything that was being sent my way. That’s when I reached out to the Canadian...
by adminmps | May 4, 2023 | Uncategorized
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another, facilitated by Angie...
by adminmps | Mar 30, 2023 | Uncategorized
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another on March 15,...
by adminmps | Feb 27, 2023 | Uncategorized
Join us at We Care – a Gathering for Parents and Caregivers. Following great feedback from the last We Care – a Gathering for Parents and Caregivers, online session for our members: the Canadian MPS Society are pleased to host another on March 15,...
by adminmps | Jan 4, 2023 | Uncategorized
a Gathering for MPS Parents and Caregivers Save your spot for the first parent/caregiver get-together of the new year! Join us on Wednesday, 25 January, 2023. The Canadian MPS Society continues to host a series of online get togethers, facilitated by Angie Lombardo,...
