a Gathering for MPS Parents and Caregivers Save your spot for the first parent/caregiver get-together of the new year! Join us on Wednesday, 25 January, 2023. The Canadian MPS Society continues to host a series of online get togethers, facilitated by Angie Lombardo,...
The Canadian MPS Society will be hosting a series of online “Fireside Chats”, providing an opportunity for our members to connect with each other in an informal confidential space to share personal stories, and insights, and exchange strategies and resources. These...
Grief is considered a “taboo” topic and should be avoided in conversation. As a result, even fewer people know how to respond to and process grief – both their own and that of others. Grief can be experienced not only after someone’s passing but also can...
On September 17, 2022, a group of my family and close friends were kind enough to come together to run the Tough Mudder Obstacle Race in memory of Raza Amin and the MPS Society. Tough Mudder is a team building endurance event series in which participants attempt...
CTV Kitchener. has featured a story on one of our children, Joseph Saliba, who lives with Sanfilippo Syndrome to raise awareness of MPS. There is no cure for this type of MPS but there is a trial underway for gene therapy, that could help prolong life. The trial,...
